Showing posts with label disease. Show all posts
Showing posts with label disease. Show all posts

Thursday, April 21, 2011

The grass is not always greener
by guest blogger Amber Leab

















People have often told me—throughout a lifetime of being underweight—how great I look.


I confidently wear a bikini.


I’m one of those people you might love to hate: I can eat anything, and as much of it as I want, without gaining weight.


People, especially girls and women, praise my thinness, exclaiming “How do you stay so skinny?!” or “You’re so lucky.”


Other people envy me—a person whose thinness is due to cystic fibrosis, who has had regular, extended hospital stays since childhood, and whose daily medical regimen no one would ever envy. But I have this bizarre cultural privilege: I am skinny. It hasn’t generally mattered to people why; thinness is seen as an always-positive attribute in our society.


In the summer of 2004, I weighed 92 pounds. I was very sick and doing everything in my power to put on weight. My doctor went so far as to prescribe an appetite stimulant, derived from cannabis, which was supposed to give me the legal munchies.


It may have helped me put on a pound or two, but that wasn’t enough.


It wasn’t just that I was too thin; I needed a lung transplant and had to weigh a minimum of 100 pounds before I would even be considered for the surgery. I was left with one option: a feeding tube for high-calorie protein shakes every night while I slept, in addition to a high-calorie diet every day. This was scary for me, not just in the way that a feeding tube (and serious illness) would be frightening for anyone, but because, in spite of the serious illness, I liked being so thin and was afraid of gaining too much weight.


I know now that these feelings had much more to do with control (and, specifically, the lack of it in my life at that time) than the actual numbers, and that they weren’t rational or healthy attitudes to hold.


As much as I knew intellectually that I was too thin, I never felt too thin.


When I finally got beyond my fear of “fattening up” (which is how countless doctors and nurses, clearly not sensitive to issues involving body image, jokingly referred to my need to gain weight) and faced the reality of my situation, I scheduled the procedure to place the feeding tube.


I did so with reticence and anxiety.


There would be anesthesia, there would be an incision through the wall of my abdomen, there would be a tube permanently sticking out, there would be pain while my stomach healed from the surgery. I would be hooked up to a nutrition pump, much like an IV pole, every night.


On the operating table, I was prepped for the procedure by a female nurse and a male doctor. When the nurse lifted the hospital gown above my abdomen, she exclaimed, “Look at that pretty flat stomach!”


I processed this statement for a moment. A medical professional had complimented me on my thinness, which was so extreme as to prevent me from having life-saving surgery, while prepping me for a procedure intended to help me gain weight.


To his credit, the doctor quickly snapped, “That’s the problem!” but her message couldn’t have been clearer.


We live in a culture that so values thinness, that values such extreme thinness, that I received a compliment about my body when I was on an operating table, when I was so ill and weighed so little that doctors feared I might not survive major surgery.


While this might’ve been a single extreme incident, I can’t say the same about a lifetime of these compliments, the envy of women, and the gaze of men directed at my ultra-thin (so thin because it was diseased) body.


I can forgive myself for enjoying these moments; I had a difficult life that inspired little envy, and I took the compliments and positive feelings about myself where I could find them.


When I received that comment on the operating table, though, I felt a tangled mess of emotions: I was happy to hear something—anything—uplifting during such a trying time, I was scared to lose that unscarred, flat stomach, and I was angry at the nurse for her inability to read the situation.


Later that same year I had a double-lung transplant and have since gained 25 pounds. I’m still thin, but curvier than before. I threw out the old bikinis. The regular “You’re so skinny!” compliments are gone, but I’ve come to see those comments, even when they were meant in kindness, as all part of our toxic culture.


Depictions of unhealthily thin women in film, television, and advertising constantly bombard us, distorting the way we see one another and how we define a “healthy” body. Extremely thin bodies are often seen as the epitome of health and beauty, when the fact is that healthy, beautiful women come in all shapes and sizes.


If we all didn’t have such a distorted view of the female form, women might have better relationships with their bodies, instead of hating them, resorting to cosmetic surgery for self-esteem issues, and having unrealistic expectations about how they should look.























AMBER LEAB holds a Master’s degree in English & Comparative Literature from the University of Cincinnati and a Bachelor’s degree in English Literature & Creative Writing from Miami University. In 2008, she and Stephanie Rogers co-founded Bitch Flicks, the feminist film review site that advances “the radical notion that women like good movies.” In addition to her film analyses, her fiction has appeared in The Georgetown Review, and in other places soon, she hopes.

Tuesday, February 8, 2011

Fat and happy? Or thin and sick?
You make the choice.

As I mentioned last Tuesday, my father-in-law, Herb Bell, died about ten days ago.

Though it may sound strange to talk about the positive aspects of losing someone you love, I have to admit that one of the most heartwarming aspects of the experience was looking at all the old pictures—pictures of my father-in-law, my husband, and the entire family. Over the years, I’ve seen numerous photos of my husband and his parents from his childhood, but last week I think I saw every single photo taken during his childhood—and his parents’ childhoods before him.

It was fascinating on many levels.

Some of things that fascinated me were obvious—how different my father-in-law looked as a child and young man. In one picture, from around the time he was twenty, he is leaning against a brick wall, his knee folded against the wall in an pretty close replica of the famous James Dean photo. I saw that photo, and a man who always looked like a grandfather to me actually appeared hot.

Yes, I said it.

Back in the day, my father-in-law was smoking hot.

But the most interesting part of looking at these photos was that we were all searching for a picture in which Herb looked . . . well . . . I guess the only way to say it is heavy.

Why heavy? Because that’s the way we all remember him—with big glasses, a cigar in house mouth, and a bit of a belly. Like Santa Claus without the hair.

So even though we were tickled to find Herb’s James Dean photo and formal Air Force portrait, we were even happier when we put our hands on a picture of Herb the way we remember him—before he was sick, before he weighed 119 pounds as he did in the days leading up to his death. We desperately wanted to remember him as the happy and healthy man we all loved.

And the whole time we were searching for evidence of his healthier, happier self, I kept thinking about how ironic it was—after Herb got sick, he was initially thrilled by his weight loss and would often brag about how many pounds he’d lost. But at some point, the novelty of being thin wore off, and we were all left with the fact that no matter how svelte and dapper the new Herb looked, we all wanted the old one back. In the end, we longed for the healthy and plump Herb and broke down at the sight of sick, gaunt Herb.

It made me wonder why we are all so obsessed with thinness when, for some of us, being plump means we’re healthy. I even had to ask myself, what would you rather be? Thin and sick or healthy and overweight? Of course, we all would choose the latter, but if that’s the case, then why is it so difficult to accept ourselves the way we are? Imperfect, yes, but still wonderfully, vitally alive.

If I had a wish for all of us, it would be this: I wish that we would all be able to truly believe this—believe that we are better the way we are—long before old age and disease makes waifs out of us, and it is finally—and regrettably—too late.